I wanted to share these family photos of my Uncle Bruce.
He passed away in 2006, at 49 years old, from Motor Neurone Disease. He experienced the first symptom 5 years earlier, unable to reach the 13th note on the keyboard he loved to play. It took nearly a year to diagnose.
He was brilliant in every way… he read to us from the dictionary, insisted we should always chew each mouthful of food 12 times and that food was to be enjoyed, even if that meant throwing spaghetti at the wall. He taught me how to salsa, swinging me around in his arms. He was my dads brother. And I will always love and miss them both.
Somehow, even when he lost all ability to move and talk, he still communicated with us through the twinkle in his eyes. His courage and resilience could never be put into words.
Tomorrow I am joining Jay on @thevirtualpubquiz to raise money and awareness for MND.
This money will go towards improving access to care, research, and campaigning for people affected by motor neurone disease now.
There is no cure. This needs to change.
So many people have reached out to me with their stories of family members they have lost, or who are living with the disease now. ????
Once you start asking, you realise how many people are effected by this illness.
I really hope you can join me for the quiz !!
And if you are able please donate whatever you can, big or small, to this very worthy cause. Thank you SO much for reading. xxx
JUST GIVING PAGE - in my bio
Or Text LILY to 70560 to donate £10
YouTube link to join the quiz for free at @thevirtualpubquiz ????
#mnd #als #mndassociation